About our global support group

We provide a fully supported private Facebook group which is strictly for families dealing with PNET brain cancer in a child or immediate family member.

Members in the group interact regularly, often daily, sharing information about their personal experience with PNET brain cancer. The forum provides invaluable information from the perspective of families who are dealing with PNET or its aftermath on a daily basis. Through this forum, families are there for each other through the ups and downs. The PNET Cancer Foundation has a dedicated volunteer to monitor the site.

We provide support to families at all the different stages of the PNET journey whether this be:

  • newly diagnosed
  • in treatment
  • in monitoring
  • in remission
  • in palliative care
  • following loss.

The PNET Cancer Foundation recognises that the PNET journey is a life long one for families whether their child is a long term survivor or has passed away.

We are especially committed to supporting families who have lost a child to PNET brain cancer. A private forum is available for these families to share their experience of grief.

Email us to join: info@pnetcancerfoundation.com

In order to join this group, we need to receive an email from you so that we can obtain the required information to verify you as a member. This process protects the privacy of all families in the group by ensuring that only families dealing with PNET brain cancer are admitted as members.