What is PNET?
Primitive Neuro Ectodermal Tumour (PNET) cancer is a type of tumour that arises from an abnormal growth or division of cells of the embryonal tissue which remains in the brain after birth and develops into the central nervous system (the neuro ectoderm). CNS PNET and other embryonal tumours tend to spread to other parts of the brain and spinal cord through the cerebrospinal fluid (CSF).
Read MoreGetting involved
Researchers do not have enough samples to do effective research into this disease. Rare tumors as a group only receive about 5% of research funding and attention.
CNS PNET Cancer currently receives no funding in Australia. Part of the problem is that researchers cannot find enough cases of CNS PNET to study to make the progress needed to find better treatments and provide more information about this disease.
Find out how you can get involved and help drive research into PNET cancer.
Supporters
Cart-Wheel is the Centre for Analysis of Rare Tumors and is embarking on a joint project with PNET Cancer Foundation. Through CART-WHEEL we are building a registry for patients diagnosed with rare tumors or rare subtypes of common tumors.
Events
We owe much of our success in past organised events to the support of friends, family and the selfless volunteer hours of individuals who choose to dedicate their time to help us.
We are always looking for fresh new ideas on how to raise funds for research. If you would like to contribute your time or skills to our next upcoming event, we would love to hear from you. In the meantime, check out our past events.
